Today Malachi had his OT evaluation. It went well and the therapist was able to give me a few things to work on while we wait for therapies to start. Malachi has low muscle tone (oh really? I had no clue, haha) and poor upper body strength. She seemed pleased with his lower body strength. His adjusted age is 6 months and he was evaluated at about 3 months. Thats 50% behind. We can work with that, I believe a lot of it has to do with getting set back after his heart surgery. He laid on his back for 6 weeks, no tummy time, no sitting up, nothing. I am confident that with some help he will make progress. I LOVED the lady that evaluated him, I am hoping that she will be his OT therapist. We can't wait to get started!
Tomorrow we are going back to the ENT for a tube follow up and a hearing test! Lets hope he FINALLY passes a test, it not, thats okay too. I am prepared for the answer either way! My love for him will not change and at the end of the day I have to remember that God made him the way he is right now for a reason!
We have our buddy walk team name...Malachi's Mafia! Now its time to start raising money, lots and lots of money! Anyone have any creative ideas to raise money? Let all pt our thinking caps on and get lots of fun ideas, isn't worth it?
Gotta get going, my chocolate chip cookies are beeping at me. I have to go eat one (or 5) while they are still hot! Have a wonderful night and give all your kiddo's a big hug and kiss. We all have so much to be thankful for!
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When Jax got his tubes we finally got an accurate hearing test. They want to give him hearing aids but I'm not so sure. I think it might overwelm him and overstimulate him. Surgery definitly makes them fall a little behind. He should bounce right back.
Glad to hear the ball is rolling for therapies for your lil one- sounds like a great start! For Buddy Walk fundraising, we've done garage sales, bake sales, penny collecting, lemonade stands, recycle aluminum cans- these were all for the younger sibs to get involved. I typically send out an email to friends and family along with a mailed invitation-seems to work well for us. While we don't raise as much $$ as some teams, last year the Dom Squad reached a total of $1020 through registrations, donations, and the above listed ideas...when is the Buddy Walk in Chicago this year? I still want to go and enjoy one some year that I'm not in charge of :)
Wow! The Buddy Walk is coming up fast! If you get a chance, could you email me the details? outsidespace2003 (at) sbcglobal (dot) net. We'd love to be a part of your team if life will allow :) We did team shirts last year, but only on the back-some teams do their own shirts completely and it always looks awesome-not dorky in the least. Let me know if you want a few printers to try for pricing, that's normally the hard part of personalized shirts...
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