Saturday, July 23, 2011

Quick update

I talked to the doc last night. She feels its best to re-test in two weeks, if it is still low she will send him to a hematologist/oncologist where they will follow up. She assured me not to worry, that a low WBC count can be caused by many things, even something as simple as a virus. So for the next 2 weeks, we pray those WBC come up!

Friday, July 22, 2011

dont be alarmed....

Tuesday Malachi went in for  his 3 year well child check up while there his pediatrician was looking of the medical form needed for school. She was transferring information when she noticed that last time they did lab work Malachi's hemoglobin was on the low side, but still within normal limits. She decided she wanted to order a CBC and a bunch of other blood work. Didn't think to much of it. I love that she is proactive and wants to make sure everything is perfect with Malachi.

Today I get a phone call from the nurse telling me they refiled Malachi's reflux meds. While I had her on the phone, I asked about his lab results. His t3 and tish were normal, some things were pending and she said "oh, his which blood cell count is low (2.9), I'll have the doc call you and see what she wants to do next." Freak out ensues. I've spend the last 30 mins on line research what low WBC count's could possibly mean and Im not liking what I am reading. Ugh. Im still waiting to hear from Dr. M but I am worried!!! Please leave me your thoughts, especially from mom's who have been down the cancer road with their children!!!! Im a mess.

Monday, July 18, 2011


With all this Ipad business going on, I feel the need to do a post. Recently Malachi won an Ipad from a4cwsn. We are so excited! Malachi has 2 verbal words, yes and no. He does sign but is extremely limited  by the weakness in his right arm from his stroke. Although he has made GREAT improvements over the last year and a half, he is still unable to rotate his wrist, isolate fingers and is often unaware of his right arm completely. Another side effect from his stroke is lack of anger management and we see this come out when he cant communicate his wants and needs with us. He hits, pinches and pulls hair to express his frustration. I completely understand how he feels, because I too get frustrated with him for his behavior. At the same time I understand why he is so angry, I would be to if I knew what I wanted but had no way of expressing it. So this Ipad will truly be a Godsend! We can't wait to work with Malachi's speech therapist to figure out which communication app will best fit his needs. He will also be on a picture schedule at school which there is an app for. We are honestly so thankful to a4cwsn and this gift they are giving us!! Our lives will change for the better, Malachi's life will change for the better and there are no words to express what that means to us!

Please got check out does an amazing job at reviewing educational apps, special needs apps and communication apps. Many of these reviews are done as a video so you can see how it works before you buy it! You can also apply to get an Ipad of your very own!! There are some exciting things coming up, so while you are at it check out a4cwsn on facebook! There you can see pictures of children who have already received their Ipads, get codes for free apps (Gary often posts free codes, but you have to be quick, they go fast!) and you can meet thousands of other parents who are full of knowledge!

Please don't let one bad apple ruin your faith in others. Give a4cwsn and Gary a look, you will be happy you did!

Sunday, July 10, 2011

Gone, gone and Gone

Yikes, it's been way to long since I posted! Please forgive me. It is summer after all and that means craziness for our family! We were in Boston for a week at the end of June, came home for a week and then spent the next week in Door County, WI. The boys are crazy due to no scheduled, I am tired of living out of a suitcase and Josh has had enough of sleeping on strange beds. At last we are home!! Thank God! Now to catch you up on all thats been going on the last few weeks.

Malachi won a Ipad from A4cwsn.
Elijah is cruising along furniture and will be fitted for SMO's soon.
Josh got hired back. Praise God.
My car broke down while we were 5 hours away from home but it was fixed in 3 days for only $160.
The boys LOVE the sand, I however do not.
Malachi aged out of Early Intervention and we said good bye to all his therapists. It was a sad week.
Elijah started signing milk and more.
Josh, Malachi and I all celebrated birthdays.
My yard is still full of weeds, leaving us looking like the trash of the neighborhood.
Our pool is still green, I hope we get to swim in it this summer but i am not holding my breath.
Our flight home from Boston was canceled but they did book another flight which took us to Miami and then      home to Chicago. 6 hours on the plane, how nice of them!
The boys were on the news...yet again.
Malachi played at the park with little assistance from us.
Elijah still eats everything in his path and has started to gain some weight!
I've been crocheting and have created some really cool things. Esty is in my future!
I have so much laundry in my laundry room that I can't even shut the door.
Last but not least...every single one o Eli's medical bills has been paid!

That is all for now. I promise the next post will be soon!