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Wednesday, August 17, 2011

Oh the places He'll go....

"Oh the Places you'll go!
There is fun to be done!
There are points to be scored.
There are games to be won.
And the magical things you can do with that ball will make you the wining-est winner of all!

FAME!

You'll be famous as famous can be , with the whole wide world watching you win on tv...."




"Except when they don't, because sometimes they wont.
I'm afraid sometimes you'll play lonely games games too.
Games you can't win cause you'll play against you.

All alone, whether you like it or not, alone is something you'll be quite a lot.
And when your alone, there's a very good chance you'll meet things that scare you right out of your pants.
There are some down the road between hither and yon, that can scare you so much you won't want to go on.
But on you will go though the weather be foul.
On you will go through your enemies prowl.
On you will go through the Hakken-Kraks howl.
Onward up many frightening creek, though your arms may get sore and your sneakers may leak."



"On and on you will hike. 
And I know you'll hike far and face up to your problems whatever they are. 
You'll get mixed up of course, as you already know.
You'll get mixed up with many strange birds as you go.
So be sure when you step. 
Step with care and great tact and remember that life's a great balancing act.
Just never forget to be dextrose and deft. 
And never mix up your right foot with your left." 


"And will you succeed? 
YES!
You will indeed. 
(98 and 3/4 percent guaranteed.)

Kid, you'll move mountains!"



"So, be your name Buxbaum or Bixby or Bray or
 Mordecai Ali Van Allen O'shae, your off to great places!
Today is your day!"


"Your mountain is waiting, so get on your way!"

-a section of Dr. Seuss's Oh the places you'll go.






Tuesday, August 2, 2011

Under a rock

Yes, we have been living under a rock the last few weeks...or months. Blogging has been the last thing on my mind. Things have been relatively boring around here and coming up with ideas of what to post have become increasingly difficult. Good thing I have some WONDERFUL friend who have been so kindly bugging me to get back into blogging. Good news, I am happy to be back and have been busy catching up on all your adventures! I can't believe how much your kids are developing and growing! It warms my heart! Speaking of growing....

 Malachi with his best buddy Bryson while on vacation.
 Another one from vacation.
 Malachi enjoying some superman ice cream on his 3rd birthday.
 Elijah enjoying the walker, yes he is getting close to doing it solo!
 Malachi in the new swing set he got for his birthday!
 Look at the attitude!!
And finally, Eli trying to copy his brother.

Malachi celebrated his 3rd birthday in July which ment we said good bye to all his therapists! However in less than 2 weeks, we say hello to his new school! So not ready for that but trying to focus on the positive. I know he will enjoy it and learn so much while he is there. When did my baby grow up?

Elijah is getting more and more talkative (yes i know this is hard to believe, he is a chatter box!) he is even starting to imitate sounds! He is all about gross motor right now which makes his OT curse like a sailor. He is a eating machine and recently surprised us all when he happily scarfed down feta cheese, raw tomatoes, raw green peppers and corn beef. He is the kid you invite over when you need to clean out the fridge! Tomorrow his is being evaluated for sure steps which means walking is right around the corner!

Josh officially got hired back to teach at the same school and the same grade! He is thrilled and I am thankful! He has been teaching summer school for the last 3 weeks and has a training all this week which means we haven't gotten to see him that much. School starts on the 15th but he has inservice stuff starting Wed. next week which leaves 3 more days with him home to help! I'm sure there will be a long honey-do list! :)

I am doing well. Trying to keep up with 2 lil men can be difficult but I LOVE staying home with them! I've been busy crocheting a lot. I've been seeing all these super cute kids hats and decided that I wanted to make some as well! I watched you tube videos and quickly got the hand of it. Now I'm a hat making pro if I do say so myself. But I have another post on that coming up later this week. I will leave you with a little teaser....
A newborn hat with ear flaps and a large brown rose! LOVE IT!

Monday, August 1, 2011

Making dreams come true

Yesterday we had the pleasure of meeting Gary James from A4cwsn. He was in the midst of delivering Ipads when he decided to come to IL and meet up to personally deliver one for us! Here are a few pictures for ya!




If you haven't already, check out A4cwsn! You will be happy you did! Look for them on facebook too!!

Ps. I am not receiving anything for promoting Acwsn. Just passing along information because I am a mom who cares and wants to see more kids get this amazing technology!!

Saturday, July 23, 2011

Quick update

I talked to the doc last night. She feels its best to re-test in two weeks, if it is still low she will send him to a hematologist/oncologist where they will follow up. She assured me not to worry, that a low WBC count can be caused by many things, even something as simple as a virus. So for the next 2 weeks, we pray those WBC come up!

Friday, July 22, 2011

dont be alarmed....

Tuesday Malachi went in for  his 3 year well child check up while there his pediatrician was looking of the medical form needed for school. She was transferring information when she noticed that last time they did lab work Malachi's hemoglobin was on the low side, but still within normal limits. She decided she wanted to order a CBC and a bunch of other blood work. Didn't think to much of it. I love that she is proactive and wants to make sure everything is perfect with Malachi.

Today I get a phone call from the nurse telling me they refiled Malachi's reflux meds. While I had her on the phone, I asked about his lab results. His t3 and tish were normal, some things were pending and she said "oh, his which blood cell count is low (2.9), I'll have the doc call you and see what she wants to do next." Freak out ensues. I've spend the last 30 mins on line research what low WBC count's could possibly mean and Im not liking what I am reading. Ugh. Im still waiting to hear from Dr. M but I am worried!!! Please leave me your thoughts, especially from mom's who have been down the cancer road with their children!!!! Im a mess.

Monday, July 18, 2011

Ipad?

With all this Ipad business going on, I feel the need to do a post. Recently Malachi won an Ipad from a4cwsn. We are so excited! Malachi has 2 verbal words, yes and no. He does sign but is extremely limited  by the weakness in his right arm from his stroke. Although he has made GREAT improvements over the last year and a half, he is still unable to rotate his wrist, isolate fingers and is often unaware of his right arm completely. Another side effect from his stroke is lack of anger management and we see this come out when he cant communicate his wants and needs with us. He hits, pinches and pulls hair to express his frustration. I completely understand how he feels, because I too get frustrated with him for his behavior. At the same time I understand why he is so angry, I would be to if I knew what I wanted but had no way of expressing it. So this Ipad will truly be a Godsend! We can't wait to work with Malachi's speech therapist to figure out which communication app will best fit his needs. He will also be on a picture schedule at school which there is an app for. We are honestly so thankful to a4cwsn and this gift they are giving us!! Our lives will change for the better, Malachi's life will change for the better and there are no words to express what that means to us!

Please got check out a4cwsn.com.Gary does an amazing job at reviewing educational apps, special needs apps and communication apps. Many of these reviews are done as a video so you can see how it works before you buy it! You can also apply to get an Ipad of your very own!! There are some exciting things coming up, so while you are at it check out a4cwsn on facebook! There you can see pictures of children who have already received their Ipads, get codes for free apps (Gary often posts free codes, but you have to be quick, they go fast!) and you can meet thousands of other parents who are full of knowledge!

Please don't let one bad apple ruin your faith in others. Give a4cwsn and Gary a look, you will be happy you did!

Sunday, July 10, 2011

Gone, gone and Gone

Yikes, it's been way to long since I posted! Please forgive me. It is summer after all and that means craziness for our family! We were in Boston for a week at the end of June, came home for a week and then spent the next week in Door County, WI. The boys are crazy due to no scheduled, I am tired of living out of a suitcase and Josh has had enough of sleeping on strange beds. At last we are home!! Thank God! Now to catch you up on all thats been going on the last few weeks.

Malachi won a Ipad from A4cwsn.
Elijah is cruising along furniture and will be fitted for SMO's soon.
Josh got hired back. Praise God.
My car broke down while we were 5 hours away from home but it was fixed in 3 days for only $160.
The boys LOVE the sand, I however do not.
Malachi aged out of Early Intervention and we said good bye to all his therapists. It was a sad week.
Elijah started signing milk and more.
Josh, Malachi and I all celebrated birthdays.
My yard is still full of weeds, leaving us looking like the trash of the neighborhood.
Our pool is still green, I hope we get to swim in it this summer but i am not holding my breath.
Our flight home from Boston was canceled but they did book another flight which took us to Miami and then      home to Chicago. 6 hours on the plane, how nice of them!
The boys were on the news...yet again.
Malachi played at the park with little assistance from us.
Elijah still eats everything in his path and has started to gain some weight!
I've been crocheting and have created some really cool things. Esty is in my future!
I have so much laundry in my laundry room that I can't even shut the door.
Last but not least...every single one o Eli's medical bills has been paid!

That is all for now. I promise the next post will be soon!