Tuesday, May 31, 2011

Away we went

Destination: Wisconsin Dells, WI
Purpose: To spend 3 whole days enjoying all that the Wilderness Lodge had to offer. 
Activities: Swimming, swimming and more swimming.

 Please check out Elijah. He quickly learned how to escape!

It was so nice to celebrate the end of Joshes school year (yes they are out crazy early this year) and Memorial Day with our good friends (Thanks Maugers)! We can't wait to go back!

Now that our first mini vacation of the summer is over, it's time to get into gear as we prepare for Malachi's first ever IEP! Friday is the big day and to say that I am worried is an understatement! EEK, I still can't believe this is happening, in August I will be putting him on a big bus and sending him to school! It honestly seems like just yesterday I was rocking him to sleep while singing "you are my sunshine", who am I kidding I still do it on occasion but now he actually claps for my less than stellar singing! ha I know these fears are normal, but seriously, he can't be old enough for school! I got his evaluation reports in the mail last week. It was so difficult to read over them! Ugh. I cried and cried. I don't like reading that my son is "severely and profoundly delayed" in expressive and receptive speech. Don't these people know what he has been through? The fact that he can make any sound at all is remarkable let along that he can walk, jump in the pool, and sign over 30 signs. Why don't they see this? Why is it always the negative? I know this meeting is going to be difficult, these strangers don't know Malachi like I know him. They haven't been with us on his journey to see his progress, all they see is what he is not doing. But they will in time and just like all the other hearts Malachi has touched along the way, they too will, will carry with them a special place in their heart that only Malachi can inspire!


eek40 said...

Hi there, I typically just lurk reading and enjoying blogs. As an educator I wanted to let you know another side of those awful to read reports. There are good things that come out of them and you are right, any good teacher will see all he can do and will work with him and you to achieve the best results. The good thing is that by having him in that catagory, if you will, he gets more services! I know that labels just plain suck, but from experience you want all the services you can get, so that label helps out. The papers are just the papers, and when he gets into his class he will shine and grow. Dont be afraid to fight for services you want for him, or need dont be afraid to advocate for him daily. If you have any questions, let me know I work with a lot of kids of differing needs. Aimee

Lynn said...

I came here to post for the first time today too! I have been reading your blog since January. I found it when my 16-year-old son was diagnosed with moyamoya. I fell in love with your boys.

I agree with Aimee about the reports. I have a niece who is handicapped and every year it was difficult for my sister to read those reports too. They are doing you a favor by making things seem as bleak as possible so he can get as much help as possible. The great thing is that the school year is FULL of focusing on the positive and the more services you can get the more positives there will be.

You are a great mother and your love for your boys shines through in your writing.