Nothing sweeter

There is no sweeter mothers day gift than the giggle, smiles, hugs and kisses from my children. Im blessed because I got those things, time 2 this year. I also got to spend the entire day with my littlest loves. 

We had a great time with my mom and dad at breakfast. Later in the day Joshes entire family came over for a late lunch. We love our families and are so thankful we get to see them often. 

And the sweetest news of all....Malachi took 3 steps all on his own!! There is nothing sweeter than seeing you child accomplish something that they have worked so hard on. I have tears in my eyes....Only 1 month after his stroke and my littlest fighter continues to amaze us all. 

Malachi and Eli thank you for making me the proudest mom ever!!!!! There truly is nothing sweeter...

On it's way

CT scan, MRI/MRA and a cerebral angiogram, along with write ups of the results, are in the mail and on their way to Dr. Scott. We have been praying and praying that issues of Malachi's insurance would cover treatment at the Children's Hospital of Boston, while it looks like we will be able to go, we are still not 100% sure. We are hoping to hear more tomorrow.

Im off for a night of relaxing with my hubby!!

6 months.

I can't believe Elijah turned 6 months old yesterday! He is weighing 10lbs 8oz and is 27 1/2 inches long (this makes him only 4-5 inches shorter than his almost 2 year old brother...ha). He is still a skinny peanut, not even on the down syndrome growth chart. However, for hight, he is in the 75 percentile. Josh keeps saying he wasn't to dress the boy up like Mario and Luigi for halloween. Eli is smiling all the time and loves when you tell him he is handsome. He has recently learned how to blow raspberries, Malachi sure gets a kick out of that. Eli is rolling over to the right, but not the left. He enjoying sitting in his bumbo chair and looking at the fan. He is drinking 5oz. of 26 calorie an ounce of formula and eating 1-3 jars of stage one baby food a day. Carrots are his favorite. He continues to hate bath time. He is wearing 0-3 month clothings with most being to big in the waist and to short in the length. He is a joy and so loved by his family. We continue to be so thankful for him.

How?

How

Can

people

not

see

the

beauty

in these faces?

God made them just like He made you and I. How can we choose whose lives are more valuable or more worthy? God never makes mistakes. These children are perfect just they way they are. Whose fault is it if you choose not to see their beauty? 

Attn. crafty bloggers

This is the logo for Malachi's benefit. It seems things are shaping up great. The friends that are organizing this are still looking for raffle items. Can you help? Are you crafty? Do you make things with your hands that others long for? Please share them with us so we can raise money to get to Boston!!! Feel free to contact me at Strikeoutmoyamoya at gmail dot com.

Looming

It's always there. Just sitting in the corner waiting to rear it's ugly head. Looming, like a thick fog.

I'm having a difficult day. I'm terrified. I am obsessively checking and re-checking. It's there, I know it is. I can't see it and what's even worse than that is, I can do nothing about it.

Moyamoya sucks. Can I give it back?

I wish I could could fix it all. I wish I could return Malachi's hand function so he wouldn't get so frustrated. I wish I could say he would never have another stroke. I wish he didn't have to have MAJOR surgery...twice.

It's not fair. But we were still chosen. He was chosen. I will make the best of this. Most of the time. But today, I just need to be angry. Tomorrow, I will go on fighting.

Moyamoya Sucks.

Do ya?

So do ya like the new blog look?? I absolutely LOVE it! A wonderful bloggy friend, RK from Braska Bear and Just RK Designs volunteered to make a button for Malachi, the her offer turned into re-doing the ENTIRE blog look. I obviously said yes and within a few short days the blog makeover was complete. Go over and check her out!!

Malachi's button is done!! Please feel free to use it on your blogs, actually, that's a must. You MUST use it on your blogs. I think back to Polly, another little girl who lives in our state and also diagnosed with Moyamoya, and her button. The first time I read her blog, it was a post about Moyamoya. When we found out Malachi had a stroke i immediately thought of Polly. I knew his stroke could have been caused by Moyamoya and pushed for testing to be done.  Had I never seen Polly's button or read her story, we could still be left with no answers. I want Malachi's story to get out there so that people can become aware of Moyamoya. SO please, post his button. Who wouldn't want to look at the cute face all the time anyways? Perhaps Im biased!