We got up super early and headed into Chicago for Malachis surgical consult on wed. After a lot of waiting we FINALLY got to speak to his surgeon (who we LOVE). He explained that the wall that separates the 2 ventricles of his heart was not there causing blood to "swish" everywhere and not properly circulated. Their plan is to go in and patch the hole (he has a little bit of the wall at the bottom and top of his heart, but it does not connect which makes a hole) with Gortex. Josh was pretty excited about this and said that Malachi was going to have a waterproof heart. (It was nice to have some comedic relief, i was feeling overwhelmed and on the verge of tears). There is another issue that they are going to have to fix, he only has 1 valve. So they are going to make 2 valves form the one. The actually surgery should take about 5-8 hours but the prep time will at up to 2 hours onto that. Because they are operating on his heart they are going to have to stop it. He will be hooked up to a machine (i forgot the name of it) to keep blood flowing to his brain. Because he is so little he will be needing a blood transfusion. He does not have enough blood to run through the machine. They will be braking his chest bone to get to his heart. I am scared. This is something no one should ever have to go through, let alone a 5 month old. He is a fighter and I know he will fight through this too! He is my Hero.
So we have to go in January 19 for some pre-op stuff but the surgery will take place on the 20th. We are waiting to get in contact with the social worker to see if there are any openings at the Ronald McDonad house that is close by. His recovery will be 7 to 10 days from the day they take the breathing tube out.
We need you to pray! Pray for the surgeons, nurses and Malachi. Pray for our family as this will be VERY difficult time. Pray for finances so that we don't have to worry about that too! We will be making a prayer card and mailing it to family and friends. If you want to be included e-mail me with your address. Thank you for all your support along the way. We look forward to the day when this is all behind us and Malachi is a Healthy little boy!
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2 comments:
I will be praying for Malachi. He is on my prayer list. Thanks for the comment on my blog.
Guess what? Sounds like your little man will have the same surgery our little guy had done but our boy was only 3 months old when he had his done...I cracked up on the waterproof heart comment too- comic relief is so helpful sometimes, huh? In our thoughts and prayers...
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