Thursday, June 23, 2011
We got the best news EVER this past tuesday! We were in Boston for Malachi's one year follow up to his Pial Synangiosis procedure. This surgery was VITAL to Malachi and his future. Pre-surgery his risk of stroke was VERY high (I was told it was more likely that he would have another than not), if not corrected the blood flow to his brain would get worse and worse eventually causing him to die. We knew the importance of this surgery and that without God's grace and the hands of a skilled and world renowned surgeon, his fate would be dismal. Early tuesday morning my sweet lil man was put to sleep for a cerebral angiogram. The Interventional Radiology team at Boston Children's Hospital inserted a catheter in Malachi's groin and ran it through a major blood vessel to the base of his brain. They then injected dye and watched it flow through the blood vessels in his brain. And flow it did, all over that brain of his. The re-routed temporal arteries stitched directly to his brain grew and grew. Now healthy vessels encompass his brain providing a healthy amount of blood to all areas. His risk of stroke is at 5%...5% that's all! Dr. Scott said the results were more than we could ask for and quit possibly the best he's ever seen. Yet another miracle God has worked in our son. We have few words that express our gratitude and even less that seem fitting enough. We are overwhelmed with gratitude to those who cared for Malachi while he spent time recovering from his stroke and surgery in 4 different hospitals. All the nurses, doctors, and support staff who used their God given talents and knowledge to provide Malachi with the best possible care. To our family and friends who have held our heads up when we were to weak to, who encouraged, listened, prayed and loved on us unconditionally, we are forever indebted. The smile on Malachi's face, the strength of his hug and the joy in his laughter is all because of you! I can't imagine walking this path with anyone else.
Sunday, June 5, 2011
We have Malachi's IEP on Friday and I am happy to report it went amazingly well! We thought all of the purposed goals were appropriate and that they were truly looking out for what is best for Malachi. He will be getting 30mins of OT, 30 min of PT and 90 mins of speech a week (in addition to what we decide to supplement outside of school), once a week he will have inclusion for gym and library time. They also mentioned a possible need for a assistive communication device, so they wrote that in as well. And the best news of all...there will only be 4 kids in his class!! That is it! We live in a VERY small district (The entire school only has 120 kids) , which I LOVE! So all in all, it wasn't nearly as bad as I expected it to be. I would even venture to say it was as close to perfection as we could have been! In a month we will go and register him and then a month after that he will be getting on that big bus and off he will go. I better stock up on Kleenex now! My baby is growing up!