- Eli needs open heart surgery.
- He needs it sooner rather than later.
- Eli is not in heart failure but has severe pulmonary hypertension.
- Eli is 3 months old and just reached the 8lb mark.
Josh and I have both been paying out ideal situations in our minds as far as when surgery would be and how we could make it work. We would love for it to be done while Josh is off for spring break at the end of March. Then we could stay as a family at the Ronald McDonald house and take turns spending time at the hospital with Eli. Malachi would be with us as the house, we would be together and Eli would have equal time with his mom and dad. Ah, this would be the perfect situation. Realistic? Probably not.
However, I got a phone call from the Cardiologist at Children's Memorial Hospital wanting to discuss Eli and our options as far as where to have the surgery. After talking to her for over an hour on the phone, I was even ore confused than ever. They seem willing to work with us on getting a date (most likely over spring break) and agreed with me that it needed to be done sooner rather than later. They arranged to have a messenger drive out to our cardiologist (about 2 hours away) to get Eli's records. This way they can discuss him at their meeting on Monday and make their decision on what should be done. Dr. V told me she would call me late Monday night and let me know what they thought. She then gave me her personal cell number and told me to call with ANY questions. I have, twice. After they meet we get to set up a time to go in and speak with the cardiac surgeon and a nurse, go on a tour and ask any and all of our questions. Did I mention Children's Memorial is ranked 12th in the nation for Cardiac surgery?
What do we do? Where do we go? Which man do we want to do the repair? How do we decide? I don't like this one bit and wish someone would just give me an answer!