Thursday, July 9, 2009
So today we had a swallow study for Malachi. While he was in the hospital for his heart surgery we found out that he was aspirating. They did a swallow study and put him on thickened formula. When he drank the thickened formula, it all went down just fine. Well his ST decided she wanted to do another one because she felt he could come off the thickener. Well she was wrong. In fact the new swallow study showed that he is, in fact, still aspirating. Ugh. So tomorrow we go to the GI doc for a "asap appointment." We are not sure what she is going to want to do, but we have a feeling a feeding tube is in our future. We are extremely sad and nervous about this possibility. We ask for you to pray, pray that Josh and I trust in the Almighty Father and his plan for Malachi. That we have peace with whatever decision is. This is a complete surprise for us something we thought we would never have to face but we are here and want whatever is best for our little man! Im needing some serious encouragement right now as this is hitting me in the gut right now! Other moms who have been through this, please leave a comment and tell me about the surgery and life after. Am I making it a bigger deal than it is? I just dont know.