tag:blogger.com,1999:blog-1126874759853767120.post2122655794287964416..comments2023-06-09T03:24:07.789-07:00Comments on Oh the places we'll go: BamBlessed with Boyshttp://www.blogger.com/profile/04764109747087733076noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1126874759853767120.post-6417547076440630902010-04-20T08:35:25.325-07:002010-04-20T08:35:25.325-07:00HEY!
I would like to suggest that you have a won...HEY! <br />I would like to suggest that you have a wonderful gift of writing. Every blog is well put together and very well said! Maybe write a letter? You could still read it to them, but then you will be able to be sure to share your heart with them in a loving peaceful way! Love you guys! Hope the "food" is ok....Will, Amanda, and Bryson Bosco'shttps://www.blogger.com/profile/04374084127488055078noreply@blogger.comtag:blogger.com,1999:blog-1126874759853767120.post-61054785165263153972010-04-20T07:22:37.382-07:002010-04-20T07:22:37.382-07:00Hello, I was sent here by a friend from another Do...Hello, I was sent here by a friend from another Down syndrome board. My daughter also has moyamoya. She was diagnosed 8yrs ago,she's now 13 yrs old and doing great. Please feel free to e-mail me with questions or just for a little support. We've felt the same concerns and lived with what we considered a "ticking bomb"(that's how ti felt before her surgery. It felt lonely and so scary.<br />Mary Grace<br />mgrace5@nycap.rr.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1126874759853767120.post-56381983649302301412010-04-20T06:24:02.449-07:002010-04-20T06:24:02.449-07:00I'm sure I'm one of those on your "li...I'm sure I'm one of those on your "list". Just know I wanted more than anything to be there with you guys and support you, but sometimes life and distance gets in the way of things. I do agree w/ Kristen in the fact that sometimes those around you don't know how to approach the situation or even know what to say, I hope you find peace in that. Miss you guys!Justin and Cortnie Luedershttps://www.blogger.com/profile/13944819345524461250noreply@blogger.comtag:blogger.com,1999:blog-1126874759853767120.post-3095873118153267392010-04-19T22:57:06.610-07:002010-04-19T22:57:06.610-07:00I'm sorry. I understand a little. None of my s...I'm sorry. I understand a little. None of my siblings came to see Max in the hospital when he had his heart surgery last fall. I still can't believe it. One lives 10 minutes from the hospital. And yet, a blogger friend I had never personally met, came up and brought a gift! I think sometimes people don't know what to say, so they avoid you. Praying from afar :)Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-1126874759853767120.post-35941758207654884552010-04-19T20:21:53.070-07:002010-04-19T20:21:53.070-07:00I'm praying for you my sweet friend... I wish ...I'm praying for you my sweet friend... I wish I lived closer to give you some support. I haven't been on blogger a lot lately, but I love reading your blog. Your boys are beautiful and they have wonderful parents. Keep holding on to faith...Emilyhttps://www.blogger.com/profile/05573655586853387634noreply@blogger.com