tag:blogger.com,1999:blog-1126874759853767120.post6665055922302452768..comments2023-06-09T03:24:07.789-07:00Comments on Oh the places we'll go: We're back...Blessed with Boyshttp://www.blogger.com/profile/04764109747087733076noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1126874759853767120.post-43205073920284065492009-03-13T22:46:00.000-07:002009-03-13T22:46:00.000-07:00Have them check his thyroid!!!! A low thyroid can...Have them check his thyroid!!!! A low thyroid can cause nystagmis (sp?). This is also what Christopher's seizures look like, but I would have thought they would have been disagnosed by now if it was seizures. Especially with all of the times he has been anesthetized. Your electrolytes being out of whack can also cause this, but kids w/DS have a higher incidence of hypothyroid than normal. Make sure to get the actual numbers of the thyroid panel. If his TSH is at all above 3.0, MAKE them treat it. Let them know that YOU know that "untreated hypothyroid causes developmental delay and he doesn't need any help on that front. Also, the American Association of Encdocrinology and Endocrinologists made reccommendations in 2000 to change the normal lab values for TSH levels to .3 - 3.0 Labs don't follow it to save money. The values in most labs are .5 - 5.0, meaning there are about 200,000 people out there each year who should be treated for thyroid, but aren't."<BR/> Say it exactly like that and it usually scares the begeebers out of the docs that they have an informed parent. Also, tell them NOT to make me come up there! LOL!<BR/><BR/>We will keep you all in our prayers. Hugs to all of you!<BR/><BR/>Steph & ChristopherAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1126874759853767120.post-24854549277630698672009-03-13T20:29:00.000-07:002009-03-13T20:29:00.000-07:00He can definitly see then if he smiles and reaches...He can definitly see then if he smiles and reaches for toys. Has the eye doctor dialated his eyes and looked in them? Because normally they can look in their eyes and see what kind of glasses they need. Jax vision problem was from a brain injury, so there's no way to tell what his vision is. But he does not track or look at people. He does look at light though.Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-1126874759853767120.post-6645342701412081192009-03-13T15:47:00.000-07:002009-03-13T15:47:00.000-07:00Jax never had an MRI for his eyes. But because he ...Jax never had an MRI for his eyes. But because he had a brain injury, they couldn't tell by just looking in his eyes how much he can see. So they did a test were they attach a probe to the back of the head and then flash a light in their eyes to see if the brain is recieving signals. His brain is recieving signals but that doesn't mean he can see. <BR/>Does he have nastagmis? Thats when the eyes move back and forth. A lot of downs kids have that but they can still see. Does he smile at you or look at toys?Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.com